Please press play and listen to the soundtrack of this page………….
My Life direction after Diagnosis…………….
Today my energy is used to cope with CRPS and fighting for awareness. It is amazing how I find when I meet someone with CRPS we can speak a different language, usually talking for hours because we are on the same wavelength. It could be true to say no one can fully understand what it is like to have CRPS until you have experienced it yourself! I have huge dreams and some small goals I want to reach in developing awareness and support for people with CRPS in Australia.
I have left behind the horses, the music (I play CDs now LOL), the sport and the Agriculture now for a new life and new beginnings. Life has taken on a new meaning, we are not defined by our achievements or successes, we are worth far more then that as a human being. I still call these things my interests although I don’t usually get much time to pay much attention to them. I have new interests that take up my time.
These new interests that I have discovered are: working towards a better life for those with CRPS, making jewellery, mosaic, photography, plus I still follow the Rugby League a bit. I realised I had a creative talent that I never knew I had, since developing CRPS.
One of my biggest new interests is living life and appreciating all the small things people take for granted each day. To have & love family and friends and all the people I have met on my CRPS Journey.
Musically I admire Delta Goodrem, but love a diverse array of other music as well!
I have a renewed interest in religion. I once considered myself Roman Catholic, now I am taking the Anglican path.
We can’t totally control the path laid out before us, as you can see how much my life has changed. I believe in reasons for everything, you take all the bad and learn from it. There is no victimisation when you learn from your experiences and put things into perspective.
~Life is too short to hold grudges of any type for too long ~
~Through Adversity comes a new direction and a new meaning to life ~
~If every Human that has wisdom and experience to share through their own suffering, and used this to help others the world would be a better place, a small piece at a time ~
I have lived with RSD for 12 years since a trauma of dropping a t.v. on my foot. The daily pain I feel is indescribable. I have not been able to work as I use to. Going from a very active woman to barely able to stand 5 minutes on my leg. My leg is swollen and in such severe pain I can’t do any of the activities I loved to do. I have gained about 30 pds. My husband has had to take over all the house hold responsibilities. Do you have any new procedures that are available, I have tried injections, medication, physical theraphy, wrapping the leg for months. Help! Lisa Coleman
Hi there Lisa.
Have you tried Ketamine? It has worked the best for me whilst the infusion was running I guess. But I had a reduction in burning and allodynia for a while afterwards as well. Probably at least 6 months, but other pain seemed to annoy me more whilst they were giving me a break! LOL Muscle spasms keep increasing and deep ache and bone pain and sharp shooting pain became more prominent. But I have the burning and allodynia again but it has been about 1 1/2 years since my last infusion. I doubt if I am getting anymore cause the pain reduction doesn’t warrant another one………..:-S However if I had the money (I researched I would need $20 000) I would travel to Philadelphia USA and see Dr RJ Schwartzman’s team as even their awake version (day patient) (4 hours of infusion every day over 10 days) is a much higher dosage. So much that you have to go for a full Cardio screening before getting the treatment because your blood pressure drops because of the Ketamine. Unfortunately I don’t have $20 000 and I don’t think I ever will
Anyways catch ya around